After the hospital...I went to see Dr. D. again...news as follows:
My CA125 increased to 1090! In May it had been 489...then it dropped to 301...now I've jumped to over 1000...holy cow!
Fluid in my lung was removed, analyzed and cancer cells were found.
CT Scan showed a possible mass on the right abdominal wall and one above the bladder.
New chemo regiment to start...this battle is getting freakin' wicked.
Thursday, June 19, 2008
Thursday, June 12, 2008
Only Hurts When I Breath...
I knew that the chemo treatment wasn't working. I should have been losing my hair...but it was growing back like crazy...I should have felt worse...but I felt great...my CA125 should have been going down...but it kept going up...something just wasn't right. Mom and I met with Dr. D. and my favorite nurse, Libby...we were all in agreement.
I was currently at the maximum dose of chemo for "an ideal body weight"...(I haven't been an ideal body weight since I was 8). Bring it on...I'm strong...I can take more...I want to push the envelop...they increased my dose by 20%. By June, my CA125 was down from 489 to 301 (normal is below 35)...but I started having other problems...my ankles were as swollen as grapefruits and I was having a shortness of breath.
Libby ordered an ultra sound on my legs looking for blood clots...but all was fine. Chest X-Ray found fluid between my right lung and the lining of my lung. She got me into see a pulmonary doctor that very day...Dr. Yagan. After assessing my situation...he was convinced it was more of a heart issue...he had me convinced too. He got me into see a cardiologist for an echo test the next day...everything looked fine. They ran some other tests and sent me home for the weekend with water pills...we'll chat on Monday.
Over the weekend, I could hardly move without losing my breath. You know it's bad when you're losing wind rolling over in bed instead of breaking wind.
After our Monday chat...they admitted me into the hospital for an Angiogram...(that's where they take a needle up through your thigh and check out your heart)...everything came back fine.
I'm not crazy...I'm not imagining what's going on. The cardiologist cleared me of any heart issues and through up his hands but Dr. Yagan didn't give up...a couple nights in the hospital...along with more x-rays and CT Scans...he finally realized that the fluid in my lungs had significantly increased.
On the 3rd day...God created a long ass needle that they stick through your back, between your ribs and into the lining of the lung to suck out a dark beer colored fluid...ahhhhhhhh...(felt just like taking a long awaited pee)...a liter of fluid later...I got to go home.
I was currently at the maximum dose of chemo for "an ideal body weight"...(I haven't been an ideal body weight since I was 8). Bring it on...I'm strong...I can take more...I want to push the envelop...they increased my dose by 20%. By June, my CA125 was down from 489 to 301 (normal is below 35)...but I started having other problems...my ankles were as swollen as grapefruits and I was having a shortness of breath.
Libby ordered an ultra sound on my legs looking for blood clots...but all was fine. Chest X-Ray found fluid between my right lung and the lining of my lung. She got me into see a pulmonary doctor that very day...Dr. Yagan. After assessing my situation...he was convinced it was more of a heart issue...he had me convinced too. He got me into see a cardiologist for an echo test the next day...everything looked fine. They ran some other tests and sent me home for the weekend with water pills...we'll chat on Monday.
Over the weekend, I could hardly move without losing my breath. You know it's bad when you're losing wind rolling over in bed instead of breaking wind.
After our Monday chat...they admitted me into the hospital for an Angiogram...(that's where they take a needle up through your thigh and check out your heart)...everything came back fine.
I'm not crazy...I'm not imagining what's going on. The cardiologist cleared me of any heart issues and through up his hands but Dr. Yagan didn't give up...a couple nights in the hospital...along with more x-rays and CT Scans...he finally realized that the fluid in my lungs had significantly increased.
On the 3rd day...God created a long ass needle that they stick through your back, between your ribs and into the lining of the lung to suck out a dark beer colored fluid...ahhhhhhhh...(felt just like taking a long awaited pee)...a liter of fluid later...I got to go home.
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