Tuesday, July 29, 2008

Surgery on Thursday...

I had an appointment with the chest surgeon at 1:30 today...ended up hanging out there for pre-op crap until after 5pm.
We decided to go ahead with the procedure...scheduled it for Thursday AM...(for details on the procedure see July 24th entry).
I can tell my lung is filling. I'm sore...winded...tired and cranky.



My apologizes to "Group Therapy"...








I'm meeting Lisa Hottle Mann in Columbia tomorrow to hand off my child. Zoey will spend some fun time with the Mann's in St. Louis...they're going on a canoe trip this weekend!





(Last years float trip pic)






I'll be in the hospital for about 3 or 4 days...skipping chemo...not getting my blood work done either.
I really don't want to know what my CA125 is right now...I like thinking it's at 496.
The more fluid in my body the higher that number may be and I really don't feel like bursting the last balloon I'm hanging by.

Friday, July 25, 2008

1019 to 496!

Can that be right? Is it working after all?
Did I actually hear some good news today?
Is God really listening?

Redo on Tuesday...just to make sure...then I can be excited.

Thursday, July 24, 2008

Add a New Dr. to the List...

Today, I saw the Gyno Oncologist...(or should I say she saw me)...our normal 3 month look up the vajayjay. I told her not to look at my toe nails...I ran out of nail polish removal last night...(half my toes were a mess)...she replied while snapping a glove on her hand, "I'm not here to look at your toes."

Oh yeah...I'll be over here in the stirrups.............

Medical Bulletins:

* My lung has been tapped 5 times within the 2 sessions of chemo I've gone through since June.
* One of the first things chemo usually clears up is the excess of fluid.
* My CA125 has not gone down.
* This regiment of chemo may not be working.
* It's early to bale on it but if my new CA125 test doesn't drop a couple hundred points...we will (I'll know more tomorrow).

She will have to contemplate the next cocktail to order for me...I did request one where I could keep my hair..."I just got it colored and everybody's been complimenting me on it lately."

Immediately following...Mom and I took the elevator to the 6th floor...there we met with my Pulmonary Dr. We had a lovely chat about the fluid that keeps accumulating in my right lung.

He is recommending a surgical procedure to fix the leak...I say just throw some duct tape around the damn thing and call it a day.

Procedure as follows:

"Pleurodesis: A procedure that causes the membranes around the lung to stick together and prevents the buildup of fluid in the space between the membranes. This procedure is done in cases of severe recurrent pleural effusion (fluid around the lungs), as from cancer, to prevent the reaccumulation of fluid.

In pleurodesis, an irritant (such as Bleomycin, Tetracycline, or talc powder) is instilled inside the space between the pleura (the two layers of tissue lining the lungs) in order to create inflammation which tacks the two pleura together. This procedure thereby obliterates the space between the pleura and prevents the reaccumulation of fluid."

I guess it's worthy of a lovely few days stay in the beautiful privacy of my very own hospital suite...party at my place!

I'm being sent to a chest surgeon on Tuesday 7/29...2pm...I'll learn more then...although I did just receive this email from Lisa Hottle Mann...I usually call her first for all my medical advise............she's much older and wiser than I.


Jo-ha!
I researched pleurodesis and it sounds totally awesome! Ok, maybe not awesome, but tolerable…and effective! It sounds just like you said. They will probably use talc as the sclerosant (chemical irritant)—now I know why they say don’t use baby powder on baby’s butts anymore—it can cause pleurodesis! The studies I read said you stay in the hospital 2 to 4 days so the chest tube can completely drain the fluid before the procedure, then you leave it in a little while afterwards to drain the chemical out and make sure no other fluid accumulates (which means it worked). After effects seem very rare and minimal, although the chest tube might be uncomfortable, and the talc sometimes causes fever afterwards. Some people even do this as an outpatient. Not you, of course, because you like to do things the hard way, but that’s ok, we still love ya.

If you want, I can rig up Casey’s nebulizer with baby powder and we can do this thing ourselves. Doctors? We don’t need no stinking doctors.

Goodnight!
Love you…
LeeleepeepeeImeanleelee

Sunday, July 20, 2008

Uneventful and Successful...

The weekend was a success...and by success...I mean no medical issues.

Saturday: the only issue I had was from the pre-chemo steroids...side effect: Ravishing Hunger! I craved crab legs for two days...go figure.

Zoey went to Jessica's sleepover birthday party Saturday night...so I called Davis to see if he was interested in helping me tackle my relentless craving...I just had to mention "Ray's Inn" and a quick "Yes" followed.

If you've never had crab legs at Ray's Inn...I highly recommend it! Awesome dinner...haven't eaten that much or that good in sometime now...my stomach handled it like a true champ!

Sunday: it's my 3rd day after chemo...usually not my best...only issue today was my constant need to close my eyes. I picked up Zoey from the sleepover...we hung out until another friend took her to lunch and a movie...which means...I napped. When she got home about 5pm...she fell asleep as a result of the late night sleepover...which means...I napped...again.
We got up about 8pm..........heading back to bed now to finish up this Sunday Sleep-A-Thon!

Friday, July 18, 2008

Drained and Better...

Want you all to know...I appreciate the thoughts and support...you all deserve to hear that I had a really good day today!

Zoey spent the day with Kathy K. Lunch...shopping...pedicures...her gift to the new 9 year old. Zoey's hit that stage...good-bye Bratz...hello clothes. I thought cancer was scary...my kids a pre-teen...now that's freakin' scary!

5th drain completed...breathing better...bounce in my step...smile on my face...no nap...heeded Laura Wickham's advise...took Zoey to see the movie "Wall-e" tonight...laughed out loud...great night with Zo...she likes it when I feel good...ME TOO!

"Hey tomorrow...where are you going...do you have some room for me...night is falling and the dawn is calling...I'll have a new day if she'll have me." ~ Jim Croce

Thursday, July 17, 2008

Same Shit...Different "Chemo" Day!

I slept the back spasms away all day yesterday...felt better in that area this morning...not feeling great about going to chemo though. I can feel fluid in my lungs again...which probably means I'll have to have it drained tomorrow after chemo...this is seriously getting old...QUICKLY!

It has definitely taken a toll on me...physically and mentally...hit me hard today. It was the first time that I ever thought about punting this whole chemo crap...but I can't...I'm not a quiter.

I'm a fighter...I'm a mother...I'm a daughter...I'm a friend...I'm strong...I'm stubborn...and I'm Jo...what would people do without Jo around. My life's not the greatest right now...but I've got the greatest people in my life...so it's definitely worth the fight!

Just need to remind myself of these facts...anyway...today:

Chemo Day number.................I've lost count...lets say "kajillion"...sounds close enough to me.

Arrived at 10:30am...departed at 5:30pm...definitely the longest day of my chemo career. Lots of pre-tests & post-tests...failed most of them...therefore my detention begins tomorrow morning at 10:30am...the punishment will be a big fat needle through the back...between the ribs...into the lining of my right lung...where they will suck 1/2 to 1 liter of fluid out of my body....FOR THE 5th TIME!

I'll be able to breath again...which is a good thing...I guess...no, yes...it is a good thing. See...I'm working on my positivity...but it is VERY HARD...especially when FRUSTRATION OVERCOMETH!!!!!

Wednesday, July 16, 2008

Spazzin' Out...

Long night in hell...started with lower back spasms about 9pm. I called the oncologist on duty and it happened to be Dr. D...she recommended some pain killers, benedryl and a hot bath. The last couple days I've been given a shot to help boost my white blood cell count...it's known to cause pain in the bones...she wasn't aware of back spasm side effects...but if that's it the benedryl should help.

I only had 2 pain killers left...so I did as she instructed...I was better until about 1am. Everything gradually got worse...major back spasms all the way up to my neck and a headache that felt like vice grips clamped to my temples. By 3am...I was twitching like a fish out of water...I didn't have any more pain killers so I took Tylenol PM which has benedryl in it. No relief whatsoever. I couldn't take the pain any longer so I had to make the dreaded middle of the night call to Mom at 4am...I told her immediately not to panic...I explained what was going on and she came right over to take me to the hospital. Then I had to call Tracy and freak her out...but I needed her to come over and crawl in my bed since Zoey was home asleep.

Emergency room at St. Luke's...they assessed my issues...gave me Morphin and Valium...and relief soon entered my world. By 7:30am, I was heading back home with pain killer and valium prescriptions. We were home before Zoey was even awake.

I called Libby to let her know what was going on...she's not sure that it's an oncology issue...I have chemo tomorrow so we'll just see how the day goes. I finally got some sleep by 9:30am...until about 4:30pm. Still having slight spasms...the drugs are helping though.

Not sure what the cause is...seems to be something new going on every other day...I could really use a break!